Poem: As Seen on TV

I was dismayed to learn of Bob Saget’s passing. I grew up fatherless and his role as Danny Tanner on Full House was important: it showed single parenthood as “normal” and nothing to be ashamed of. For thirty minute segments, he stepped in as a positive father figure where I had none. This feeling was so engrained in me that the first time my husband sat down with our oldest son when he was upset to have a heart-to-heart my first thought was, “Huh, like Danny Tanner,” and my second was, “Oh, like a dad.”

In November 2019, I was processing my childhood traumas and the complicated relationship I have with my parents when I wrote a poem that referenced this. I figured now is as good of a time as ever to share it with others.

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2021 & done

I went digging through old journals to uncover what the intention was for this year and I came across something dorky that’s better left private (but champagne is now involved, so no holds barred): “2020 was the year of mental health, 2021 will be the year of the glow up.” 🤓

Not everything went as planned in the last 365, but I did hold up to that: I lost almost 40 lbs, continued to work through a 747 worth of baggage, got more interested in skincare than my past self would admit, mastered an influencer-worthy self-care morning routine, and bought enough clothes (many second hand!) for my new size that would make my husband grit his teeth at the end of a few months. More importantly, I painted, a lot. I even wrote a little. Gifting myself small pockets where I’d steal away from other responsibilities to create for a few minutes at a time has given me a “glow” that no serum, highlighter, or even a dress covered in sequins could replicate.

Behind great leaps are the hurdles beneath, stumbles unseen, and challenges set aside for another day. “Stealing away” for creativity feels that way every time: over indulgent. Guilt overwhelms with each direct message, comment, and text message that goes unanswered (almost all of them—please call or send a Snapchat!). Saying ‘yes’ to more creativity means saying ‘no’ to many. I say yes to my sons and husband, yes to myself & the care I need to show up best for them but I say ‘no’ often to people, tasks and opportunities that are of great value.

In the New Year, I know that I won’t be able to balance “it all,” because “having it all” and “doing it all” is a patriarchal, western myth. ESPECIALLY as a mother of a young family. But in 2022, I hope to feel less guilty over what I say no to and allow space for my art and writing to flourish. I hope that the writing and art I create, the children I raise, and the people I support interpersonally are the greatest contributions I will have in this lifetime. I hope to have the courage to ask for help or grace in the areas I struggle to manage on top of the strides I make in those areas of life.

As 2019 came to a close, I called it “the year of community.”
As 2020 came to a close, I called it “the year of mental health” and correctly forecasted 2021 to be “the year of the glow up.”

2022 will be “the year of less.”

In 2019 I enriched the soil, 2020 I carefully tended to the seedling of my dreams, and in 2021 I watched myself flourish. What I hope for 2022 is to shamelessly prune aspects of life that, no matter how much time is spent on them, will not be my greatest contribution. In pruning back what’s not my greatest work, I hope to see my art and writing branch out to new heights.

The Anniversary of my Cancer Diagnosis

Twenty-nine years ago on this date, I was diagnosed with cancer. I was so little. There’s no way I could pronounce Acute Lymphoblastic Leukemia, nevertheless understand what was happening in my body.

Childhood cancer is unique in that it doesn’t disrupt the patient’s life like it would an adult’s. The foundation of life isn’t yet there for disruption: a young child experiences the first hospital stay, the first round of chemo, the first spinal tap in the same way that children experience their first day of kindergarten, their first time riding a bike, and their first time tying their shoes.

I learned to tie my shoes while sitting in a hospital waiting room to receive treatment. My mom was talking to a mother she befriended whose child, diagnosed with the same disease, was back for round two after his cancer came back.

I fumbled as I showed him how I was learning to tie, and he showed me a different way, with bunny ears. I thought he had it wrong, yet I couldn’t show him the way to do it “right.”

That child died the same year. He was ten years old. I wasn’t old enough to grasp the devastation or to fear anything other than the dark. A child’s life is a series of events they can’t control, they have to get good at going through the motions. Those were the motions I went through: my mother asking if I wanted to go to this child’s funeral, then wondering that afternoon, as I played with toys under my Meemaw’s table, if I should feel bad for not going with her. The motions of refusing anesthesia as I recovered from another spinal tap, as even at four, five, and six years old, I preferred pain to uncertainty.

The motions also included being allowed to quietly play with my pre-K teacher in a dimly lit classroom while naps were strictly enforced for my classmates, some lying on their mats pretending to be asleep. It included missing much of kindergarten and the first grade to pass hours alone with my mom in a sunny hospital playroom, my left arm attached to a rolling IV stand, my right painting as I overlooked my town six flights below.

These stuffed animals were gifts from concerned family and friends as I came home from that first hospital visit

It wasn’t all bad. The mind can’t recollect the physical sensations of pain, no matter how significant. The mind can only recall the suffering that accompanies pain. Because of the privilege of unknowing and the affectionate touch from my mother consoling me, my suffering was not profound. Memories of that time in my life are fond, like the ones described in the previous paragraph.

It is because of these fond memories that I foolishly believed having childhood cancer didn’t affect me greatly. I didn’t think I was a “real” cancer survivor, because I wasn’t aware enough to experience overwhelming fear, impending doom, or the suffering that accompanies those big feelings. Even through my twenties, when it came up in conversation, I would shrug it off: “I didn’t really know what was going on. I think it was harder on my mom than it was on me. I can’t imagine having a sick child.”

I see now how wrong I was. As I was sick and my mom was worried, I felt responsible for her worry and apparent pain. I realize now that when adults would learn I was sick, I’d see their pitying glances and show them with my larger-than-life—or, larger-than-illness—personality that I was going to be fine. I wasn’t frail or pathetic or someone to be pitied. I’d dance, I’d sing, I’d put on a performance and perhaps people wouldn’t have sadness wash over them when they saw my thin hair, frail body, and when they considered probability of a tragic outcome from my diagnosis.

The significance of chemo memories faded in favor of typical and atypical childhood interests and activities, but I realize now how integrated it became in my personality to show up, do big things, and make sure people around me didn’t feel sad. My go-to response of emphasizing my mother’s emotional pain over my own childhood loss wasn’t a perspective I gained as a young adult with a child of my own—rather, it was how I felt all along. I was carrying the emotional pain of others and constantly trying to be more or do more so that I wouldn’t provoke pity again.

I kept up the performance, I was fearless and reckless, I was unflinchingly positive, I achieved goals. My need to prove myself, to be alive enough, manifested in different ways over the years. Childhood cancer affected me greatly. No one is the same after they receive a cancer diagnosis. No one. What’s different in survivors of childhood cancers, specifically those whose long-term memories were not yet formed, those whose only memories from before and around that time were because of the trauma affiliated, is that there isn’t a “before cancer” self to compare to the “after cancer” self.

I’ll never know how much cancer changed me, because a cancer diagnosis wasn’t a pivotal moment when things changed. Rather, it was a building block: molded and baked into my very being during my most formative years. It’s a part of me, it runs through my veins just as gifts of blood from people I’ll never know once did. As my doctors used all the tools in their arsenal to improve my health and well-being, I was learning to be scrappy, to heal, to fight, and to survive.

The Epilogue

I am a storyteller, 
through and through
A childhood defined by
Long afternoons spent around
a kitchen table
Listening
Learning

A bellowing laugh
Between sips of sweet tea
Faded fast-food mugs
In topographical hands
Mountains, valleys, creases
a story of their own.
Age and wisdom
To have both
A story in itself

Receiving
My own stories
Before I could
Decode
Lines and curves
Connected on a page
Before I could connect
A written story to my own

Once upon a time
A parental loss
A sick child
Left to fend,
to fight battles
Illness and Ill will
A tale of
defiance and defeat

A tale of force
Into my story
Into my body
An ink spill
Permeating the pages
A did
cannot be undone

A mystery
of madness, mania
A page turner,
the answer
Escaping on the breeze
of your exhale

An epoch of war
disguised as romance
An era of fear
disguised as family
An age of harm
disguised as home

The reveal
The rise
The run for your life
The strengthening
The escape

The heartache of another
More painful than my own
History repeats itself
Every fairy tale
Begins with tragedy

The hero’s journey
Metamorphosed
Metaphorical
mountains to climb
Led to literal
Landscapes of grandeur

The epilogue is
written
spoken
painted
in technicolor
shades of a
post-storm sunrise
Illuminating a new day

New York Comic-Con 2021: Adam Savage Panel + Covid Differences

On Friday I hopped on the train with my teen and headed into the city with him for the first time since covid began for New York Comic-Con 2021. This wasn’t our first time to the convention—we attended NYCC 2019 and had tickets booked already for 2020’s event that was later cancelled.

We initially had tickets for the whole family, but as the event neared we decided that we didn’t feel comfortable taking our younger son, who’s not yet of age for a vaccine, and ended up taking a couple of my teen’s friends. Though his friends were coming, he still wanted to do a duo costume with me. After some deliberation, we both had the idea at the exact same time(!) that the iconic duo we should dress up as had to be Jay and Silent Bob.

My attempt at making a judgemental Jay face while Silent Bob shows me he’s mastered the mirror selfie

I was away on a girls trip for the week (more about that later!) leading up to the event, so my teen decided with his dad what panels he and I were attending, and didn’t realize we were seeing the world premiere of the new Chucky TV show (which was amazing!!) and Adam Savage, nor did I realize the sort of royalty that the former MythBusters host is in the Comic-Con circuit. Unlike my husband and son, I’m not invested in any of the specific fandoms represented at the Cons, I’m more of a nerd for Art, Creators, and Costuming.

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Is it time to disappear for a while?

In August, I resurrected this old blog with intentions of getting back in the groove of frequent posting. It struck me that my youngest would soon be in a threes program at a local preschool for three and a half hours, three days a week. I could now expect to have ten and a half uninterrupted hours a week to position myself toward some long-term goals and create new habits that weren’t accessible with a lack of childcare.

I knew it wouldn’t be easy to add more to my plate. There’s a lot of hoops to get through to maximize time when you’re time-blind and enterprising. I did some research into planners for folks with ADHD minds and found a planner that I thought would suit me best. I got geared up and started working with it right before my oldest son’s first week of school.

Despite this, things didn’t go as planned.

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